CFS/ME support organisations
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One Click
To my mind this is the most actively campaigning group on behalf of CFSs. Their email newsletter is excellent and well worth subscribing to!
Action for M.E.
This is an active national ME support group with locally based contacts. Initially I found this a useful organisation. Now they seem to have gone down the CFS is psychological path so I am no longer a supporter of them.
- ME Action Campaign, 3rd Floor Canning House, 38 Victoria Street, Bristol, BS1 6BY, Telephone: 0845 123 280
PAN Pesticide Action Network UK
A support group for patients with pesticide exposure. You can write to them at
- 56-64 Leonard St., London, EC2A 4JX or contact them via the website www.pan-uk.org
Local groups:
- MEND: ME North Derbyshire, 46 Edinburgh Road, Chesterfield, Derbyshire, S41 7HE
- MEDALS: ME Doncaster, 10 Thellusson Ave, Scawsby, Doncaster DN5 8QN, Tel: 01302 787353.
- ME North Notts: 3 Roderick Avenue, Kirkby in Ashfield, Notts
- ME Leicester: 36 Scraptoft Lane, Leicester, LE5 1HU
- Action for ME: contact
- Heather Sharpe,
27 Ringstead Crescent,
Sheffield S10 5SG.
Tel: 0114 266 4292.
- Heather Sharpe,
- Shropshire and Wrekin ME Support: contact
- Peter Ruberry,
108 Wenlock Road,
Shrewsbury, SY2 6JT.
Tel: 01743 356018
Email:petercr@sagainternet.co.uk
Website: www.shropshiremesupport.org.uk
- Peter Ruberry,
An online support group/forum
On a global support group called ME-CFS Community.com there is a UK group formed by a CFS sufferer Kieran Hall. The desire to break the isolation of the illness lead him to set up a place for UK sufferers with ME and CFS to go to. Membership is offered to everyone completely free of charge and the only motivation is the desire to support sufferers as well as enable exchange of information. The link to the UK Group is on the right hand side of the Main Page. Please, note that Dr Myhill does not necessarily endorse all the information on the ME-CFS Community.com website.
Recommended Reading
- The Sinatra Solution Metabolic Cardiology by Stephen T Sinatra. Available from Amazon.
- Why ME? - Dr. Belinda Dawes and Dr. Damien Downing available from most book shops. £4.99.
- ME, Post Viral Syndrome and How To Live With It - Dr. Anne McIntyre, Thorsens, 1992, £7.99.
- Better Recovery From A Viral Illness - Dr. Darrell Ho Yen from Dodona Books, "Corriemuir", Viewhill, Inverness, IV1 2EA, £14.50.
- Recovering from Chronic Fatigue Syndrome - William Collinge
- Nutritional Medicine, A Drug Free Guide To Better Family Health - Dr. Stephen Davies and Dr. Alan Stewart. Pan Books 1987, £4.99 in paperback.
- Guide to Self Healing - Mathew Manning 1989 Thorsens.
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References
Sarah Myhill Limited :: Registered in England and Wales :: Registration No. 4545198
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